Five years ago today at 4:50am I got a telephone call from the Organ donation team at the Churchill Hospital. They had a kidney which may be suitable for me. This was the third time I'd received the call during my four years on haemodialysis.
Jamie and I got to the hospital as quickly as possible. I had an x-ray, a myriad of blood tests and various other tests to be sure that I would be healthy enough to receive the transplant.
I had a
final dialysis session in the afternoon and then tried to sleep as the operation wasn't going to happen till later in the evening. I went down to the operating theatre at about 11pm. The next thing I remember was waking back in my room; full of tubes and exhausted. Only then did I know for sure that the transplant had gone ahead!
My kidney didn't start working straight away, so unfortunately that wasn't my
final dialysis session. I was allowed home a week after the operation but had to return to the Churchill initially daily and then every couple of days.
In all the time I was ill, the 4 weeks after the operation was the worst time. Every visit to the Churchill involved a blood test; a wait for the result and then the massive disappointment when I saw that the results weren't good so I had to have another 4 hour dialysis session. Then I needed a blood transfusion - I was depressed as I felt I was worse off after the transplant.
However, after 4 weeks, the results began to improve a bit. I didn't need dialysis but did need to be careful with my diet and drink plenty - hard after being on restricted fluids for 4 years.
Within 3 months I was feeling reasonably normal and only visiting the hospital every weeks. I returned to work 4 months after my transplant. Within 6 months the appreciation of the transplant really kicked in. From then on I realised exactly how much better my life is without dialysis.
I continue to see my consultant every two/three months and my kidney function remains stable. I met someone at the hospital the other day who has had their kidney for 37 years, so I'm fully expecting mine to keep me going for a long time yet!
Thank you organ donors and the NHS - I know where I'd be without you!