Always Something There to Remind Me

10 years ago this week I had my kidney transplant - I try not to go on about it too much, but I figure 10 years of a much-improved life is worth a highlight. My pills keep my kidney and the rest of my body working and working together.

There are a lot of pills, but they're just part of the daily routine so no problem - and if it keeps me away from dialysis for a few more years I'll be very happy to keep on taking them. To mark my 10th anniversary I'm saving up all my 10 pence pieces to give to the Six Counties Kidney Patients Association in a years time. And, since mentioning it on Facebook, I've had so many generous offers from friends and family that I think I'll need a bigger collection pot!

As a kidney patient under the Oxford Churchill Hospital I am extremely well looked after. I have a blood test every 3 months (more if I feel that I need something checked out) and can look up my own results within a couple of days using PatientView - it's brilliant. Then the following week I see my consultant to discuss my results, how I'm feeling, any issues and whether my pills need altering. It's a very smooth system, for me.

Thank goodness for our NHS! Where would we (I) be without it? Well I can guess, and it's not a happy place and I wouldn't have a lovely allotment to play about on!

Please support the NHS and sign up for organ donation if you can - thanks for reading.

Song title courtesy of various people but I couldn't find a good video, so here's a Sandie Shaw version...

Everybodys Talkin

It's been organ donation week in the UK. There have been lots of positive news stories showing how lives are changed by the gift of organ donation.

As a person who has lived with kidney problems since birth, leading to the need for dialysis at the age of 38, I can certainly agree that a shorter wait for a donor kidney is very welcome if not life-saving. I was lucky, I only had a four year wait.

The gift of a kidney literally gives the recipient a new lease of life. A chance to remember how it is to have free time, enjoy food, have the energy to do something active and feel like yourself again.

Thankyou to my donor's family. Thankyou to my donor. And thankyou to anyone who reads this post and talks about it to their family, so that, should the worst happen, the terrible decision may be slightly less terrible.

Nilsson provides the beautiful track...

Organ Donation - Please Sign Up!

Five years ago today at 4:50am I got a telephone call from the Organ donation team at the Churchill Hospital. They had a kidney which may be suitable for me. This was the third time I'd received the call during my four years on haemodialysis.

Jamie and I got to the hospital as quickly as possible. I had an x-ray, a myriad of blood tests and various other tests to be sure that I would be healthy enough to receive the transplant.
I had a final dialysis session in the afternoon and then tried to sleep as the operation wasn't going to happen till later in the evening. I went down to the operating theatre at about 11pm. The next thing I remember was waking back in my room; full of tubes and exhausted. Only then did I know for sure that the transplant had gone ahead!

My kidney didn't start working straight away, so unfortunately that wasn't my final dialysis session. I was allowed home a week after the operation but had to return to the Churchill initially daily and then every couple of days.

In all the time I was ill, the 4 weeks after the operation was the worst time. Every visit to the Churchill involved a blood test; a wait for the result and then the massive disappointment when I saw that the results weren't good so I had to have another 4 hour dialysis session. Then I needed a blood transfusion - I was depressed as I felt I was worse off after the transplant.

However, after 4 weeks, the results began to improve a bit. I didn't need dialysis but did need to be careful with my diet and drink plenty - hard after being on restricted fluids for 4 years.

Within 3 months I was feeling reasonably normal and only visiting the hospital every weeks. I returned to work 4 months after my transplant. Within 6 months the appreciation of the transplant really kicked in. From then on I realised exactly how much better my life is without dialysis.

I continue to see my consultant every two/three months and my kidney function remains stable. I met someone at the hospital the other day who has had their kidney for 37 years, so I'm fully expecting mine to keep me going for a long time yet!

Thank you organ donors and the NHS - I know where I'd be without you!

Join the NHS Organ Donation Register